The first thing my neurologist stated after telling myself, and my family that yes, “you do have MS!” really surprised me. After reviewing my records, diagnostic test results from every test known to help piece most difficult diagnosis together, and all his findings in his head to toe physical on me, he said, “Brace yourself for the fight of your life!”
It’s been almost 3 and half years since we heard the possible MS, and Boy should we have truly braced ourselves. Not only do we have to fight off all the various symptoms that come about sometimes daily, we literally feel the word fight can describe almost every situation concerning the explanation we were so eager to hear, and learn to understand. Whether it be fighting the symptoms, fighting insurance, fighting for our rights, or fighting to change the overall outlook on having the diagnosis, “Brace yourself for the fight of your life” literally is proving to be a must.
Have you braced yourself? Have you put away some of the fears that automatically enter your thoughts, and thought of how your going to handle this fight? My guess, is probably not, but we as regular Joes have to develop an approach to make sure we first get what we need to get better, and can recover to a certain degree what we all know can promptly be taken from us so quickly. I can honestly set and voice my doctor is wonderful at helping me achieve most of the things I eagerly wanted to fix or try to recover due to his passion, but he is human and cannot fix every thing we run into. Have you developed a go getter attitude. If he says you need to do this to feel better, or to recover function do you cooperate fully or do you have excuses? I think I have did both in life before my diagnosis, and a little after, but today I have learned pushing the go getter attitude above the excuses will eventually help you further your expectations of ever feeling like you did the last time you can remember feeling your best. Unfortunately my point being whether we feel good or not sometimes it takes us being a go getter, bracing ourselves for fighting your symptoms, fighting insurances for medicines, devices, assistive technology, treatments, etc to actually feel any difference on this journey. If we didn’t brace ourselves and fight they win, or the disease wins. I have never liked losing at anything whether it be losing a loved one, losing a valuable, losing a game, or losing abilities. Either way I dislike it a lot, and I hope you do too. Disliking that feeling can turn into something positive if you tell yourself I am not going to set here and allow this disease to suck the life, and fight right out of me.
After my 5th serious fight with my insurance company over not covering 2 medicines they have previously covered for 2 years I have had to dig a little deeper with it being my 5th run in with them and brace myself even harder. What types of ways do you and your caregivers brace yourselves? What has worked for you, or what has been a waste of time? All discussions have eventually helped me so far, and I’m sure your experiences bracing yourself will help someone else. Now dig deep, and Brace yourself for the fight of your life!!